Join the fun, and the fight, for Delmar!

This year I signed up for Reece’s Rainbow’s Angel Tree Program to help raise $1,000 for an orphan’s adoption grant.  The hope is that this $1,000 will help defray the cost of the child’s adoption, which can often be an obstacle for families who would otherwise welcome him into their family.

So I’d like to introduce you to the little man I’m helping.  Meet Delmar!

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He is 10 years old, but only the size of a toddler.  He is shy and sweet, and has learned how to cope with his life and its lack of stimulation by rocking and looking at his hands.

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This is from someone who met him:

He rocks and looks at his hands a lot. No aggression at all. Is a bit shy with new people but responds well to his favorite carers. He is only the size of a skinny toddler, 20 pounds ish. His institution could be worse I guess… 20 kids for 2 carers. He’s an easy one to look after and the carers like him so he gets more attention than some of the others. He’s non verbal but has powerful lungs for yelling when food is involved – he loves food so I don’t know why he’s so teeny. He’s on pureed / liquidy food that he is fed via a spoon. He’d be fine with little kids!

So, what can you do to help?  Well, the angel tree campaign has not yet begun, so they are not tracking the donations that Delmar gets toward the $1,000 goal that we have.  But that doesn’t mean we can’t fundraise!  I put together a shirt design and am asking you to help us reach our first goal: selling 50 shirts!  You can purchase a shirt, share on Facebook, e-mail all of your generous friends a link– it’s up to you!

But please do something, for Delmar’s sake!

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We only have until November 1 to reach our goal of 50 shirts sold.  

It will be a challenge, but it will be worth it!

Please share our shirt campaign: A Family for Delmar

Hold the Phone

Like Liz Lemon, I want to just shout, “Everybody shut up for a minute so I can think!”…

You don’t have to get that reference, but for some reason I have to type it.

Because this.

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No.  Look again.

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That is a real child, not a doll.

Ok.  Now that we’re clear on that, we’ll move onto another installment of…

Boys under 2 with Down Syndrome from Paul’s Country

As always, click on faces to learn more.

First up, doll baby, aka Truman (but really some name we don’t know like Vladimir or Sasha).

Born sometime this year, no other medical conditions mentioned!  He looks quite healthy, though a adorably light in the hair department (but many babies are).

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Next, we have a redhead- Clyde!  Someone, please, go get him before he is blonde.  I maintain that in the vast majority of cases, children from Ukraine will have sandy blonde hair by the age of 1, no matter what they started out as (redhead, bald, brunette, like Paul).

He’s got a number of medical conditions, most notable (besides Down Syndrome) is HIV.  But we don’t really have to be afraid of HIV.  Learn more here-please, educate yourself!  The atrial septal defect is a heart condition- a hole between the upper chambers of the heart.  It could close on it’s own (as small ASD’s commonly do), or it could need to be repaired.  It is one of the most common heart defects and while it can cause long term lung issues if left unrepaired, it would likely be an easy fix here in the States.  Torticollis is an abnormal head or neck position.  From this photo, it honestly doesn’t look like he has torticollis, but if he does, early intervention with a physical therapist (for exercises, stretches, etc) would likely provide good results.  “Disorder of the brain” sounds scary, but that’s just how this country describes mental delay, which we could have already deduced since it is typical with Down Syndrome.  Dermatitis…get some hydrocortisone cream and be on your way!  Lastly, biliary tract issue- this I don’t know much about, as I don’t have much experience with gastrointestinal issues.  Maybe the little fellow needs his gallbladder out?

But he’s cute under all that blur…

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Rogan, still waiting.  I talked about his medical conditions here.

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Could this be another photo him?  I think so!

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And lastly, Octavian, who has quite the grant fund: nearly $6000!

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Pray for these kids tonight, and for all children who don’t have the love of a family.

Minor Surgery

It’s 8:33pm and I’m a few hours from home in a hotel room, typing with a blanket over my laptop as Paul sleeps a few feet from me in a pack n’ play.  He didn’t nap today (which resulted not in crabbiness but hilarity- what a funny kid!) and he didn’t want to go to bed either.  But I finally showed him that he had a familiar blanket and stuffed animal, so he seemed to be able to finally settle in.

Tomorrow Paul has minor surgery for ear tubes!  Seriously, this is easy stuff.  7:30am surgery time, 9am finished at the latest, an hour of recovery, and we’ll be on the road back home.  Normally, ear tubes don’t even take that long, but lucky Paul also gets to have a hearing test done while he’s out cold.  We know he can hear, but we aren’t sure how well he can hear at certain frequencies.  Certain frequencies that are necessary for speech.

It seems Providential to me that we are even having this done because up until a couple months ago, it was probably one of the furthest things from my mind.  But now, the night before, I have a few hopes for these ear tubes.  The first, of course, would be improved hearing for Paul, which would lead to more babbling and words, a greater awareness/alertness to surroundings, and more interaction and engagement with his environment.  The second would be comfort, because having pressure behind your ears doesn’t feel so great.  I am also hoping that this comfort results in less head banging on his part.  I’m not entirely sure why he bangs his head, but he wants that sensory input for some reason.  He does it when frustrated, but it could also be tied into increased discomfort in his ears.  Who knows.  I’ll probably have to do some more things to help him stop hitting his head on things (helmet, sensory diet), but I’m hoping that the corrected pressure in his ears will help.  Lastly, I’m hoping the ear tubes will help with the whole wax situation.  Because gross.

So if you think of it, please whisper a prayer for Paul- that this little event will expand his world a bit and make him more able to soak it all in. :)

Lastly, sorry I have been absent.  But whoa have we had a great few months!  I really have to update you, most especially on preschool!  That post will come soon, along with some photo dumps from late Summer.  And I’ll let you know how this whole tube thing turns out.

 

What does the future hold?

The past few days I’ve been thinking about education, and skills, and jobs, and the future.

Not mine, but his:

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A lot of parents who have children with special needs seem to worry about these things.

I guess I’m just not worried.

Maybe it’s my naivete.  I like to think it comes from the experience of seeing how some people are so impoverished.

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What is the future for someone who is forgotten?

A loving family and a true and beautiful Faith…our futures are held within these.  We have no reason to fear, or worry, or have anxiety.  Because even if Paul never speaks, or writes, never learns basic independent living skills, stays under our roof always…he’s loved.  And he wasn’t always (save our Heavenly Father and Mother).  For a time, he lived the greater poverty.  But that’s over now, so there is nothing left but hope and joy and life.  If your child never lived that poverty, all the more praise to God, because it was and is as it should be.  He or she is better off than so many who still endure the pangs of hunger to be cared for, wanted, loved.

So what does the future hold?  I think it holds transcendent joy.

Because he cannot ask for himself.

Meet Brett, a handsome little guy in Eastern Europe who has cerebral palsy.

Photo from March 2014!

Photo from March 2014!

Brett has been living life in an institution for nearly 7 years.   Such a life is marked by a pervasive poverty.

Each day comes and goes without proper attention and stimulation, sound education, loving discipline, medical care, the love and affection of a family, the knowledge of God, His Truth and His Goodness.

Probably the only time he ever got to play in that ball pit was for this photo.  No exaggeration.

Probably the only time he ever got to play in that ball pit was for this photo. No exaggeration.

Children do not fare well in orphanages- not physically, and certainly not emotionally.  It is not where they thrive.  For many, they don’t even survive!  So, when a child could potentially be adopted, it is a life changing, life saving opportunity.

Brett’s opportunity is here.

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A family already traveling to his country in a mere 2 weeks to adopt another child, would like to also adopt Brett.  But they don’t have the funds.  Adoption, particularly international adoption, is expensive.  Some people don’t like the idea of donating so a family can adopt.  I used to feel that way.  But let me tell you: many people can afford the day to day care of a child, even a child with special needs like Brett, who has cerebral palsy.  That is not the obstacle.  The obstacle is the expenses for the adoption.  Expenses that most families cannot afford on their own.  Flights cost money.  Facilitators cost money.  Translators, medical visits, country passports and VISA’s, transportation, food, paperwork.  And none of it is for the benefit of the family; it’s for the future of a child.

Brett has a grant through Reece’s Rainbow, a 501(c)3 nonprofit organization.  If that grant increases by $3,500, his adoption expenses will be covered entirely.

But not only does it need to jump up by $3,500, it needs to do it in 6 days.  Sounds impossible, but God and His people are generous, so I believe it can be done!

To help this effort, many generous people have come together to offer a matching grant of $1000 for Brett’s grant fund!

How does a matching grant work?  Every dollar donated to Brett will be doubled, up until $1000 has been donated.  So, $5 will become $10, $50 will become $100, etc.  It’s like magic.

Please help us take advantage of this entire matching grant.  If we take full advantage, Brett’s grant will increase by $2000 by the end of it, making him so much closer being able to be adopted!

Such a hopeful expression! 

Please help- pray, share, give!  We are asking because Brett cannot ask for himself.   Could we make a sacrifice in our comfortable lives so a child has a future?  Forego the Starbucks and give $5.  Pass on the summer pedicure and give $30.  Personally, I’m going to cut my own hair, and donate the $45 I had planned to spend at the salon.

Please, go and donate now.  Time is of the essence!  Once Brett’s grant reaches $11,713.75, it means the entire matching grant has been met!

Brett would thank you, if he could.  And he’d probably flash you this adorable smile, too.

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20 Months

I met two very special children while adopting Paul.  Two boys who have weighed on my heart every day since I laid eyes on them, held their hands and stroked their cheeks.

May God be praised that, after the first family that tried to adopt them could not proceed, a beautiful young couple, Josiah and Jenny, stepped forward.  Jenny is in country now, visiting the boys everyday.

She wrote this beautifully true and difficult blog post that I hope you’ll read:

I will never leave you nor forsake you

Please keep this family, soon-to-be sons included, in your prayers.

Another edition of…

BOYS, UNDER 2, WITH DOWN SYNDROME FROM THE SAME COUNTRY AS PAUL.

Rolls right off the tongue.

You might remember, a long time ago when we last did this, that there were SEVEN little guys who fit this category.  Guess how many there are now?

THREE!

So that’s kind of refreshing.

Though, there are 2 familiar faces:

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Otto, born March 2013

And here are two updated photos of Otto!

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Friends, he is only 15 months old–just a baby.  That was the same age Paul was when he came home, and even so young, he really needed to come home!

Then there’s Olen…

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Olen, born May 2013

I’ll be honest about Olen.  It says nothing about a possible heart condition.  It doesn’t say he has one, but it also doesn’t say he doesn’t have one.  I’m a bit concerned about him.  He looks too pale and too thin.  I think he’s struggling.  I could be wrong; I hope I am.

And the new guy on the block:

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Rogan, born May 2013

Rogan has a couple other diagnoses besides Down Syndrome, most visibly a cleft lip, and a cleft palate.  He also is said to have rickets, an additional chord on the left ventricle of the heart, and carries hep C antibodies.  None of these raise huge red flags for adoption, in my opinion.  Though the cleft palate raises a big flag that says something like, “Adopt me soon because I’m choking and aspirating when they feed me, so I’m probably malnourished and suffering from chronic pneumonia.”  To me, that flag is more worthy of consideration.